No where to turn!

So today is headache day 54.  Doesn't even matter anymore.  We will start with Tuesday.  I went in for an appointment with my neurologist only to find out my appointment had either been canceled or vanished from the system.  I'm still not sure exactly what happened.  I went in today for tests because I am still losing feeling in my fingers and toes, as well as my cheeks and lips.  All at random times.  He wanted to make sure I didn't have a pinched nerve or inflammation somewhere.  I didn't.  Every test he has run has come back normal.  As far as he is concerned this is just a migraine and I just have to deal with it.  I have to wait for the medication to work.  The medication I have already been taking for six weeks.  While each day I get worse and worse.  Here is how it all breaks down in order of how I noticed the symptoms.

- Headache
- tastebuds off when drinking anything carbonated
- tingling feeling in fingers/toes followed by numbess
- extreme pain in back of head
- pain between shoulder blades
- pain in left shoulder down into arm
- lips and cheeks numbness
- muscle spasms back of head down neck in shoulder-blades down into back area
- left arm swelling, getting a little worse every day

So now he says the headache is just a migraine and he can't explain the other stuff and I should see my family doctor so he can refer me to a specialist down in say Indy or maybe even the Mayo clinic where they deal in little know illness like I may have.  Because I so can afford to drive all over the country trying to figure out what obscure disease I may have.  Never mind I asked him about checking to see if I had a csf leak because a lot of the symptoms I have are similar to a csf leak and he point blank told me I can't have one and he would not test for one.  When I asked about getting a second opinion he first said it was my right but he then later told me he would not give me a name of a person to go to.  So I sit here crying not knowing where to turn.  According to him I have to return to work in two weeks even though I am barely functioning. Not having any answer as to what is wrong with me and not believing for one second that for all of these days I have been dealing with a migraine.  I am beyond upset and don't know where to turn or even who to turn to.